Every week in the UK at least 12 young people die of undiagnosed heart conditions
Cardiac Risk in the Young provides screening for people between the ages of 14 and 35 years old. Since its formation in 1995, Cardiac Risk in the Young (CRY) has been working to reduce the frequency of young sudden cardiac death (YSCD). CRY supports young people diagnossed with potentially life-threatening cardiac conditions and offers bereavement support to families affected by YSCD. CRY promotes and develops heart screening programmes and funds medical research. CRY publishes and distributes medical information written by leading cardiologists for the general public. CRY funds fast track referral, screening and cardiac pathology services at leading UK hospitals. There is a simple way to diagnose most cardiac abnormalities. This is by having and ECG (electrocardiogram) test. Results .
should be read by a cardiologist. For extra clarity an Echcardiogram (ultrasound scan) can also be done. If there has been a young (under 35) sudden death in the family, the family is entilted to be screened on the NHS.
CRY has a mobile screening team of medically qualified personnel, who will visit sports clubs, schools and other community venues on request, to screen people between the ages of 14 and 35. CRY's screening team consists of a Doctor, and Echo Technician, one or more ECG Technicians, an administrator and a Screening Manager who will set up the equipment on site.
Any person who is considered to have an abnormal ECG will be given an ECHO on the day; and some people may also be invited to have a full cardiac evaluation at a later date.
After the date of screening, every person's ECG/ECHO, completed health questionnaire and consent form is forwarded to CRY's expert doctors for research purposes-increasing the understanding of the conditions and ultimately helping to reduce the number of young sudden cardiac deaths. These days are only funded by people or groups who raise money to hold such events in thier local communities usually becuase a loved one has been lost to a Young Sudden Cardiac Death. The cost is £3,500 per day at which 100 young people will be screened.
The aim of the Daniel Hughes heart screening fund is to raise enough money to provide a programme of heart screening days whereby a minimum of 200 young people have access to screening on an annual basis. The first of these events will take place on the 3rd and 4th of September 2016 at Sir Thomas Boughey High School Halmerend. Funding is in place for the next 2 years but with more money we can scan more young people and hopefully save a young life. A series of events is being planned for 2016 to raise awarness of the need for screening and also raise much needed funds. The support of the local community has been overwhelming since Dan passed away; people have walked, run, cycled, baked cakes, painted, worn pyjamas to school, designed and made cups, held fund raising meals, worn Christmas jumpers, sang and many other things. A large number of national and local organisations have supported us with direct contributions, donations or sponsorhip.